While 2021 was an extremely challenging year, we are incredibly excited about the next steps for OurBrainBank. We want to revolutionize:

  • The power that patients have to engage in their care
  • The tools that providers have to improve health and quality of life outcomes.

After closing our pilot GBM study in 2021, 2022 will bring a new, even more ambitious approach to integrating symptom and quality of life data into the collaborative decision making of people living with GBM, their caregivers, and providers. 

We're working with researchers at a top university to design our new app that collects quality of life data with minimal burden on the patient and caregiver – giving a real-time opportunity to address problematic symptoms and assess tumor recurrence.

OurBrainBank CEO Kip Beardsley attended the annual Society for Neuro-Oncology conference where he spread the word about our work, met with funders, and attended sessions that explored topics such as how the data from OBB’s new app will be useful for to support the research on GBM in externally augmented clinical trials. It was heartening to see so many people gathered with the goal of advancing the fight against GBM.

Three years ago, the organizers of the inaugural GBM Drug Development Summit reached out to our founder Jessica Morris. When she learned no GBM patients were on the program, she asked why the bloody hell not? Thus she was invited to be the opening speaker and made a huge impression on the doctors, researchers, and executives there. In January, Kip will speak and share how OBB is continuing to assure the voice and experience of the patient are integrated into clinical trials and treatment decisions. 

Please consider OurBrainBank for your end-of-year giving. We have ambitious plans to accelerate GBM research and improve the quality of life of people living with GBM today. We need YOUR help to collect more data for research and to turn our aspirational GBM Bill of Rights into reality. 

Ask your employer if they will match donations.

Holiday shopping? Choose OurBrainBank on 

Donate via  
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Select OurBrainBank on
Checks: 4628 Vernon Blvd, Suite 308 Long Island City, NY 11101
Cheques: 41 Cheverton Road, London N19 3BA


Jessica Morris (1963-2021)
Photo by Maria Spann
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Thank you to our partners & supporters 

OBB launched in the US in 2018 and is a 501(c)3. UK Registered Charity #1184699.

Copyright © 2021 OurBrainBank, All rights reserved.

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