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It's March! Brain Tumour Awareness Month in the UK, where the OurBrainBank app is now available.

Our global reach is growing, and awareness is crucial as we extend our support to patients worldwide, working to move glioblastoma from terminal to treatable, powered by patients.

As a new GBM patient, I am jumping on board with Brain Tumour Awareness month because the more we spread the word, the better we’ll be at spotting symptoms and getting faster diagnoses and treatment.

It's a great way to help build the community and push for research. I'm grateful to those who've helped me. Pass it on!

— Jana Bennett, OBE, OurBrainBank UK Trustee

Check out our latest activities: 
In Australia, OurBrainBank is going live! Thanks to a fantastic collaborative approach initiated by Dr. Kim Kaufman and Dr. Brindha Shivalingam at Chris O’Brien Lifehouse.

They plan to incorporate OurBrainBank into GlioNET, a multi-center observational trial for newly diagnosed patients which will track patien­ts over the course of their cancer journey. 

Dr. Kaufman explains: We love the OurBrainBank app — it’s a user-friendly, elegant solution to capturing this really important, but under-sampled information. 

In the UK, Londoners Alice Morris and Harry Fowler raised $5000+ for us by climbing Mount Kilimanjaro. Their dispatch from the summit: 

Mount Kilimanjaro was a truly life-changing and humbling experience. The strength and spirit of our crew reminded me of my Aunty Jessica, as at our lowest moments they would say to to us "never give up" which without a doubt got us to the summit.

Big thanks to them both. We invite you to keep the donations coming! 

US News: seeking expert 

In the US, we invite tech/health leaders to apply for our paid position supporting our ground-breaking initiative on clinical trials. Please contact Aurelia Driver for more information.

Welcome to our new advisers!


E. Antonio Chiocca, MD, PhD
Harvey Cushing Professor of Neurosurgery at Harvard Medical School, Neurosurgeon-in-Chief and Chairman, Department of Neurosurgery at the Brigham and Women’s Hospital; and Director of Surgical Neuro-oncology at Dana Farber Cancer Institute

David A. Reardon, MD
Clinical Director, Center for Neuro-Oncology at the Dana-Farber Cancer Institute, and Professor of Medicine, Harvard Medical School


OurBrainBank Medical & Technical Advisors are led by Dr. Fabio Iwamoto of Columbia University. Full list.

OurBrainBank Voices Video Chats

Ask a neuro-oncologist: Dr. Alexis Demopolous, one of our medical advisors will join OurBrainBank Voices for a live chat later this month. Meet him on our YouTube Channel.

OurBrainBank Voices support chat: UK GBM patients & carers: please join us March 12 for a live video call to meet fellow travelers. 

To be notified about upcoming video chats, please join our Facebook support group or write us.
THANK YOU & PLEASE GIVE
 
Please consider a recurring gift via PayPal, donate on JustGivingOurBrainBank.org, or mail a gift to the address below
DONATE TODAY
Get the Free OurBrainBank App
GBM patients and carers in the UK or US (patient must be 18+)
Registration code:
OBBUK (UK)
OBB100 (US)
Please spread the word. More than 600 people have downloaded the app. The more people we have, the more progress we'll make. 

   

Comments from app users:
"Awesome news! I am recording my symptoms with the app, easy to use and I’m excited about this app!"
"I just passed Day 50 and responded to the midpoint questionnaire. It’s so simple... everyone should do it!"

Join our Facebook group for GBM patients and caregivers. Email us for invites to free video support chats. Visit our YouTube channel for longterm survivors' stories and "how to" videos for our app. Instagram too.

Want to help? Donate, set up a crowdsourcing page, give on JustGiving or mail a check to OurBrainBank P.O.Box 835 Telluride, CO 81435-0835 or a cheque to OurBrainBank UK 41 Cheverton Road, London N19 3BA

Help OurBrainBank by shopping on Amazon. Start on Smile.Amazon.com (US) or Smile.Amazon.co.uk (UK) and select OurBrainBank as your designated charity.
 
Please email us questions or comments, we would love to hear from YOU!  
 
The OBB study is approved by the IRB in the US and is UK University Ethics approved. OBB launched in the US in 2018 and is a 501(c)3. UK Registered Charity #1184699.
Founder and Chair, Jessica Morris, living with glioblastoma

Photo by Maria Spann
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