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OurBrainBank is live in the UK!

 

Dear Friends,

We're delighted to be able to offer our free, certified app to glioblastoma patients and carers in the UK!

Last week many of you were with us for the official launch of OurBrainBank in London - and what a night it was.
PATIENT POWER
Jessica Morris dialled in from New York to join guests alongside our newest trustee, the fabulous Jana Bennett, trustees Julia Hobsbawm, Simon Matthews, and Jake Arnold-Forster, our host William Eccleshare of Clear Channel Outdoor, and to finish, Jess Mills, Tessa Jowell’s daughter.

Jess welcomed OBB into the family of charities bringing dynamic new approaches to cancer and officially declared us a partner of the Tessa Jowell Brain Cancer Mission which she leads.

OBB is centred around patients, so it's important that our UK board of trustees has not one but two of us living with GBM: Jessica Morris and Jana Bennett.
PUBLICITY
Two excellent pieces featured Jana (Evening Standard, Daily Mail) and in addition, OBB itself earned a prized Op-Ed Leader column. Jessica also wrote another of her searingly brilliant pieces about what OBB is here to do.

Meanwhile all over London, digital billboards of the extraordinary creative campaign created for us by FleishmanHillard went live.

This publicity is vital because we want every single patient who has GBM to know about the app and to share data, as we transform this disease from terminal to treatable and yes, we CAN.
WHAT WE ASK OF YOU
So these are the headlines. Now what part can you play? Well, we launched on “Giving Tuesday” and many of you have already been incredibly generous with donations and time and expertise: thank you.

But we want to ask again now that we have OBB registered for one-off or monthly gifts on PayPal, please give, so that we can bring on board a daily team to make OBB’s mission a reality: people, resources, and 100% of all money raised will go directly to expenditure which moves the needle on our mission.

PEOPLE POWER
You can also help in the following ways:
  • Use your networks on Facebook, Twitter, and Instagram to ask people to join us and to spread the word.
  • Tell GBM patients and ask them to tell their doctors about our study.
  • Help us create campaigns, media coverage, or suggest ways in which you can help us: in the first instance please email us.
We'd like to thank the Belinda Coulson Foundation who gave proceeds from their first fundraiser in memory of Belinda Coulson, who had GBM, for their generous donation.

Thank you again!

OurBrainBank UK
NEXT UP
In the US: Jessica is on her way to the first GBM Drug Development Summit. When the organisers asked her for input, she noted the patients' voice was missing... and now she's the opening speaker!
Get the OurBrainBank App
Free to patients and caregivers in the US or UK. Register using the code OBB100 (US) or OBBUK (UK). Patient must be 18+  Please spread the word to fellow travelers! More than 600 people have downloaded the app. The more people we have, the more progress we'll make. 

  

Comments from the OBB App users:
"Awesome news! I am recording my symptoms with the app, easy to use and I’m excited about this app!"
"I just passed Day 50 and responded to the midpoint questionnaire. It’s so simple... everyone should do it!"

Join our Facebook group for glioblastoma patients and caregivers. Email us for invites to free video support chats. We also have a YouTube channel with stories from longterm survivors and a series of "how to" videos for the OBB app.

Want to help? Please donate, set up a crowdsourcing page with your story, or mail a cheque to:
OurBrainBank UK 41 Cheverton Road, London N19 3BA UK

Help OurBrainBank by shopping on Amazon. Purchases made on Amazon Smile benefit OurBrainBank. Start shopping on Smile.Amazon.com and select OurBrainBank as your designated charity.
 
Founder and Chair, Jessica Morris, living with glioblastoma. 

Please email us questions or comments, we would love to hear from YOU!  
Registered Charity: 1184699. The OBB study is UK University Ethics approved. Principal Investigator: Dr Florien Boele, YCR Academic Fellow at the University of Leeds Institute of Medical Research and Leeds Institute of Health Sciences. OurBrainBank launched in the US in 2018.
Photo by Maria Spann
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