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Findings of OurBrainBank's pilot study published
Neuro-Oncology Practice published "Pilot study of smartphone-based health outcome tracking (OurBrainBank) for glioblastoma patients." 

Our Brain Bank founder Jessica Morris (1963-2021) was one of the authors along with Board member Kelli Duprey, Advisors Dr. Lakshmi Nayak and Bruce Hellman, volunteer Jacob Ellen, and Dr. Florien Boele, a researcher who helped us get ethics approval for our study in the UK.

Next Steps for OurBrainBank
In 2018, OurBrainBank launched its pilot glioblastoma study using a free smartphone app that patients or care partners used to track health indicators. The success of the pilot study demonstrated that people living with GBM would contribute health data to a central database using mobile technology. 

In 2021, OurBrainBank will close the pilot study and develop OurBrainBank 2.0 using new technologies to continue to harness the power of patients.

We are now poised to expand to full-scale implementation — sustaining and expanding OBB partnerships with academics, researchers, clinicians, people living with GBM, and fellow advocates.

Our goal: gather patient-reported outcomes that will empower patients and advance research and advocacy.

We thank everyone who helped make our pilot study a success and look forward to new and exciting developments. 

If you'd like to continue using the OurBrainBank 1.0 app, here's how

Read an interview with OurBrainBank CEO Kip Beardsley in the new International Brain Tumour Alliance magazine (page 106).

GIVE
Donate OurBrainBank.org or JustGiving 
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Checks: OurBrainBank 4628 Vernon Blvd, Suite 308 Long Island City, NY 11101
OurBrainBank UK 12 Beverley Road London W4 2LP UK
OurFOUNDER
OurBrainBank Founder Jessica Morris 1963-2021
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Thanks to our partners & supporters 

Photo of Jessica Morris reproduced with permission from Novocure GmbH© - all rights reserved. Permission for global image use was obtained from the patient.

The OBB study has approval by the IRB in the US and University Ethics in the UK.
OBB launched in the US in 2018 and is a 501(c)3. UK Registered Charity #1184699.


Copyright © 2021 OurBrainBank, All rights reserved.


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