Glioblastoma Awareness Day:
Take our patient action charter survey and take a selfie
This first Glioblastoma Awareness Day — July 17, 2019 — is an opportunity to honor those who have lost their lives to GBM. It’s also a call to action to help people living with the disease today and their care partners.
We developed a surveyto learn what the community needs. Please share on your social media using the hashtag #GBMDay. Jessica will hand-deliver the results to Capitol Hill on July 17.
We’re also asking people affected by GBM to make a sign saying “Glioblastoma Awareness Day #GBMDay” then take a selfie and record a short (less than one minute) video about why GBM Awareness day is important. Need help? More information or write us.
Post to your social media using hashtags #GBMDay #OurBrainBank. If you’d like us to post it, send to email@example.com
Thank you to the OurBrainBank community—people living with GBM, their loved ones, friends, family, medical professionals, researchers, and anyone whose life has been changed by this terrible disease. Your support gives the magic power of hope.
New to OurBrainBank? Learn about our efforts to move glioblastoma from terminal to treatable, powered by patients. OurBrainBank.org
Get the OurBrainBank App
Free to patients and caregivers in the US. Register using the code OBB100. Please spread the word to fellow travelers!
Comments from app users:
"Awesome news! I am recording my symptoms with the app, easy to use and I’m excited about this app!"
"I just passed Day 50 and responded to the midpoint questionnaire. It’s so simple... everyone should do it."