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Dr. Ramakrishna, Associate Professor of Neurological Surgery at Weill Cornell Medicine and New York Presbyterian Hospital
A big thank you to Dr. Rohan Ramakrishna of Weill Cornell who joined us for an hour-long Q&A on our recent VOICES call. And a big shout-out to the patients and carers who joined.

Dr. Ramakrishna answered patients' questions about "awake" surgery, clinical trials, tumor storage, and much more. If you missed it, you can watch it here.

Dr Ramakrishna promotes an individualized, patient-centric approach.

 

It's always a collaborative effort between me — the doctor — and you, the patient and family. I think of us as co-captains in terms of making decisions.

We had planned to be in Chicago this weekend for the ASCO (American Society of Clinical Oncologists) Annual Meeting — one of the most important and well-attended oncology conferences worldwide.

For obvious reasons, ASCO 2020 is going virtual, running from Friday 29th to Sunday 31st May. OurBrainBank has a virtual "booth" at ASCO2020 where we'll be promoting our app and support community, and we'll be sure to report back on any GBM developments. 
The trustees of OurBrainBank UK have talented friends — Patrick Naylor and Tim Robinson, haven't been able to play together as usual, but they got together virtually to record the jazz classic Stompin' at the Savoy and dedicated their performance to OurBrainBank UK. Thanks Patrick and Tim!
Our featured patient this week is Mark Cesarano. Mark has been living with GBM for 4 years. He's an amazingly generous member of our community offering his expertise as an insurance and benefits consultant freely to GBM patients and carers.  
 

I think people like to know there is somebody else out there going through this, and they are grateful just to talk.


Thank you, Mark, for all that you do. Read Mark's full story.
Please consider a recurring gift via PayPal US, or PayPal UKdonate on JustGiving, GoFundMe CharityOurBrainBank.org, or mail a gift to the address below
DONATE TODAY
Get the Free OurBrainBank App
GBM patients and carers in the UK or US (patient must be 18+)
Registration code:
OBBUK (UK)
OBB100 (US)
Please spread the word. More than 600 people have downloaded the app. The more people we have, the more progress we'll make. 

   

Comments from app users:
"Awesome news! I am recording my symptoms with the app, easy to use and I’m excited about this app!"
"I just passed Day 50 and responded to the midpoint questionnaire. It’s so simple... everyone should do it!"

Join our Facebook group for GBM patients and caregivers. Email us for invites to free video support chats. Visit our YouTube channel for longterm survivors' stories and "how to" videos for our app. Instagram too.

Want to help? Donate, set up a crowdsourcing page, give on JustGiving or mail a check to OurBrainBank P.O.Box 835 Telluride, CO 81435-0835 or a cheque to OurBrainBank UK 41 Cheverton Road, London N19 3BA

Help OurBrainBank by shopping on Amazon. Start on Smile.Amazon.com (US) or Smile.Amazon.co.uk (UK) and select OurBrainBank as your designated charity.
 
Please email us questions or comments, we would love to hear from YOU!  

Not on our mailing list? Sign up here

 
The OBB study is approved by the IRB in the US and is UK University Ethics approved. OBB launched in the US in 2018 and is a 501(c)3. UK Registered Charity #1184699.
Founder and Chair, Jessica Morris, living with glioblastoma

Photo by Maria Spann

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