Jessica Morris, OurBrainBank founder, and Jana Bennett, OurBrainBank trustee, wrote this important opinion piece about what a Biden presidency could mean for cancer care, and more specifically, for GBM patients.
If Mr. Biden wins the election we hope he will be able to double down on his longstanding commitment to advancing cancer care... The last decade has had extraordinary advances in innovative cancer care, with new drugs and personalized treatment, but for most people with glioblastoma, these therapies are unavailable... we also need to ensure that real energy, resources and renewed focus are given to advancing treatment of the most intractable and often neglected cancers. Read the full article.
Meet Courtney B. — writer, doctor, and brain tumor patient. She's funny, smart, and candid and shares her thoughts in her blog, Elephant, Lotus, Brain Tumor.
"An internal medicine physician living with a malignant brain tumor... I started this blog the day I diagnosed myself with a brain tumor in Thailand in January of 2020. Honestly, the story only gets crazier from there."
We're thrilled that Courtney will be joining an OurBrainBank Voices call for our community in November.
Every day, a doctor walks into an exam room and tells a patient that they have been diagnosed with glioblastoma. A patient learns that GBM is the most common, complex, treatment-resistant, and deadliest type of brain tumor. (Source: NBTS)
The GBM Bill of Rights helps patients and families as they navigate their difficult journey.
Please consider a donation to help us spread the word.
GBM patients and carers in the UK or US (patient must be 18+)
Please spread the word. More than 600 people have downloaded the app. The more people we have, the more progress we'll make.
Comments from app users:
"Awesome news! I am recording my symptoms with the app, easy to use and I’m excited about this app!"
"I just passed Day 50 and responded to the midpoint questionnaire. It’s so simple... everyone should do it!"
Want to help?Donate, set up a crowdsourcing page, give on JustGiving or mail a check to OurBrainBank P.O.Box 835 Telluride, CO 81435-0835 or a cheque to OurBrainBank UK 12 Beverley Road London W4 2LP UK
Please email us questions or comments, we would love to hear from YOU!
Not on our mailing list? Sign up here. The OBB study is approved by the IRB in the US and is UK University Ethics approved. OBB launched in the US in 2018 and is a 501(c)3. UK Registered Charity #1184699.Founder and Chair, Jessica Morris, living with glioblastoma