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Newsletter | 11.2020

COVID-19: MetabERN Recommendations for all rare IMD patients & Caregivers 
To help the entire metabolic community we have developed some recommendations that aim to support all IMD patients and caregivers during the COVID-19 emergency. Please share this information within the rare metabolic community.
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The impact of COVID-19 on rare metabolic patients and healthcare providers: results from two MetabERN surveys
 
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ERN Status Report | November
Take a look at the ERN status report of CPMS and ECP for November 2020. Great to see the that the CPMS is being used by MetabERN HCPs.
ERN Status Report
Manifesto for a European Health Union
The Manifesto invites the people of Europe to engage in building a health policy that contributes to the long-term sustainable development of the European Union. The Manifesto sets out a vision of a European Health Union (with goals, policies, measures, principles) developed by the signatories of the Manifesto.
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EJPRD Policy Meeting
The objective of this meeting is to kick off the discussion on the future Rare Diseases Partnership under Horizon Europe (HE)Their strategic ambition is driven by key societal challenges translated into the needs of stakeholders (patients, the research community, healthcare providers, funders, etc.) and supported by dedicated collaborative actions implemented at EU, international, national and regional levels.
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