Copy
March 2022
TransplantChild News & Events
12th ERN TRANSPLANTCHILD BoN
May 5th and 6th
Hôpital Necker-Enfants malades
Paris, France
Dear Colleagues,
We are currently organising the 12th Boartd of Network for the 5th and 6th of May. From the TransplantChild coordination team, we would like to take this opportunity to thank professor Chardot and his team for their kind offer to host this Board, sign of their commitment and dedication to the ERN. This meeting will be hosted by l'Hôpital Necker-enfants malades in Paris, France, and held at Paris Descartes University. We hope to see you all there!
Don't forget to block the date on your agenda!

Add event to calendar

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All 24 ERNs united to help Ukrainian people with rare diseases
All 24 European Reference Networks (ERNs) launch a dedicated website and social media campaign to collect information to help health professionals to find support for Ukrainian patients with rare diseases: diagnosis, treatment, advice.

Our health care providers (HCP), particularly those located in the countries currently receiving large numbers of refugees (Poland, Slovakia, Hungary, Romania) are ready to help Ukranian patients with rare / very rare diseases, for specific diagnostic procedures and treatment. Those centers work in close cooperation with the ERNs they belong to.

From TransplantChild, we made an effort to collect the information about the availability and means to receive and take care of some of the paediatric patients from the different centres of the ERN. If your centre has the means to take care of some of these patients, we would appreciate it if you could contact us at coordination@transplantchild.eu.
Visit the dedicated website
New TransplantChild publication
Six centres of the ERN TransplantChild participated in this study which aims to examine the prevalence of autoantibodies (AAB) after paediatric liver transplantation, and to determine their relation with the outcome. Previous studies regarding the prevalence of AAB after paediatric liver transplantation show inconsistent results and while some of them found an association between AAB and autoimmune liver disease, others were not able to draw such connection. The aim of this multi-centre  study is to expand current knowledge on the prevalence, associated factors, and clinical impact of AAB after paediatric liver transplantation.
From the TransplantChild coordination team we wold like to congratulate the researchrs from Hannover Medical School (Hannover, Germany), Azienda Ospedaliera Papa Giovanni XXIII (Bergamo, Italy), Hospital Necker Enfants-Malades (Paris, France), The Children’s Memorial Health Institute (Warsaw, Poland), Institute of Clinical Medicine (Vilnius, Lithuania) and IRCCS Pediatric Hospital Bambino Gesù (Rome, Italy) for their publication and thank them for their contribution.
Do not miss the opportunity to read this interesting article!
Read article
SAVE THE DATE: Monthly Live Case Discussion
Next Session 28th April
Last Thursday, 31st March we held our Monthly Live Case Discussion on HSCT. From the TransplantChild coordination team we want to thank Dr Jelena Rascon, from Vilnius University Hospital Santaros Klinikos for moderating the session, and to Dr José María Pérez Hurtado (Virgen del Rocío University Hospital) and Dr Victoria Bordon (Princess Elisabeth Children's Hospital) for presenting such interesting cases. The next session is scheduled for Thursday, 31st March. The topic of discussion will be "transplant in asystole". We will be updating the information during the upcoming days.
If you want to join the discussion, or if you want to present a case in future sessions, please contact us at coordination@transplantchild.eu. We hope you could join us at the discussion and share your experience in the field.
News & Events
New e-learning course available:
"Tolerance in paediatric transplantation and Transition to adulthood"
We have already begun uploading to our e-learning platform the lectures presented during the 3rd TransplantChild Workshop on "Tolerance in Paediatric Transplantation and Transition to Adulthood", held on November 11th.
If you wish to have access to this and other TransplantChild courses, contact us at e-learning@transplantchild.eu and include your name, surname, hospital or institution and role, in order to get an e-learning user account.
If you were not able to attend the workshop, this is your opportunity to learn from cutting-edge experts on the field of "Tolerance monitoring and induction" and "Trasition of care".
e-learning
Peter e-learning course
The PETER e-learning course is already available on our Moodle platform. In this course, you will find all the necessary information to use the registry: training material, video tutorials, user manuals, etc.
If you do not have an e-learning account yet, please send us an email to e-learning@transplantchild.eu and we will create it for you.
Access the course
TransplantChild Solidary Run
The ERN Coordination Team in Madrid, Spain is organising a Solidary Run on April 10th. The event will take place in Juan Carlos I park, in Madrid. From TransplantChild we would like to take this opportunity to thank everyone involved in the organisation of the event, and to all the participants who will be participating in this initiative. Thank you all and see you at the finish line!
Solidary Run
 ERN Activities

 

Exchange Programme
 

 
The ERN Exchange Programme 2021-2022 is currently underway. Its aim is to share knowledge and stimulate collaborations between healthcare professionals within the ERNs. Professionals can further their knowledge applying for an exchange with a centre that can provide the necessary knowledge, expertise or facilities. Over 1000 "Travel packages" of 5 working days are available to healthcare professionals who wish to pursue a short term training stay.
In 2021 and 2022, three different rounds of exchanges will take place between professionals of Healthcare Providers that are members or affiliated partners of an ERN. A NEWSLETTER with more information about the programme has been issued. Don't miss this opportunity!
Visit the TransplantChild site to learn more about the exchange programme
Learn more
EJP RD Events
The European Joint Programme on Rare Diseases (EJP RD) brings over 130 institutions to create a comprehensive, sustainable ecosystem allowing a virtuous circle between research, care and medical innovation. The EJP RD has two major objectives:
  1. To improve the integration, the efficacy, the production and the social impact of research on RD through the development, demonstration and promotion of Europe/world-wide sharing of research and clinical data, materials, processes, knowledge and know-how
  2. To implement and further develop an efficient model of financial support for all types of research on RD (fundamental, clinical, epidemiological, social, economic, health service) coupled with accelerated exploitation of research results for benefit of patients.
The EJP-RD organises a series of events in order to promote research on Rare Diseases, such as certified workshops or funding opportunities. Do not miss your chance to participate in these events and get involved with the EJP RD.
Visit the EJP RD site for more information
Upcoming events
 Webinars:
TransplantChild webinars are a series of videos from ERN TransplantChild that promotes the dissemination of insights and knowledge regarding paediatric transplantation. We are always looking for ideas and topics, if you want to know about a particular topic or, even better, can share your knowledge about a topic: please get in contact with e-learning@transplantchild.eu and we will set a date!
Latest Webinars:
03/03

Dr Eduardo López-
Granados
 
Tolerance Induction and Monitoring in Paediatric Solid Organ Transplantation (TIMPSOT): Survey results

18/02
 
Dr Patricia Costa Vaccines in paediatric solid organ transplant candidates and recipients

15/02
 
Dr José Jonay Ojeda &
Dr Lars Wennberg
Launch of Monitoring 2021 exercise and TransplantChild awards
01/02 Dr Hubert can der Doef Portal vein complicaitons after paediatric liver transplantation
Visit our YouTube channel to find more webinars
Visit channel
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