1st Meeting of TransplantChild Patients Associations and Eurordis
14th December of 2018
Last Friday 14th of December Hospital Laz Paz in Madrid held the I Meeting of Patients Associations of TransplantChild. This meeting was promoted by EURORDIS and their patients’ representatives through the European Patient Advocacy Groups (ePAGs).
Thanks to Eurordis, this meeting gathered representatives of patients associations from 4 different countries along with clinicians and patients. The Scope of the Network and the contribution of patients in ERN TransplantChild were the main topics of the morning sessions. The priorities of the patients’ subcommittees, and work and responsibilities distribution for next year took up most of the afternoon time.
The meeting also counted with the social point of view and the patient and family experience.