Copy
March 2022
TransplantChild News & Events
12th ERN TRANSPLANTCHILD BoN
May 5th and 6th
Hôpital Necker-Enfants malades
Paris, France
Dear Colleagues,
The 12th Board of TransplantChild will be held on May 5th and 6th. Thanks to Professor Chardot and his team at l'Hôpital Necker-enfants malades for their kind offer to host this Board.
As you know, these meetings are essential to evaluate the achievements of the network and determine the next steps it should take. Furthermore, it is also a great opportunity to get in contact and share your knowledge with healthcare professionals from different backgrounds, and with contrasting points of views.
Do not miss the chance to participate and deciding on the future of the ERN. We hope to see you all there!
All 24 ERNs united to help Ukrainian people with rare diseases
All 24 European Reference Networks (ERNs) launch a dedicated website and social media campaign to collect information to help health professionals to find support for Ukrainian patients with rare diseases: diagnosis, treatment, advice.

Our health care providers (HCP), particularly those located in the countries currently receiving large numbers of refugees (Poland, Slovakia, Hungary, Romania) are ready to help Ukranian patients with rare / very rare diseases, for specific diagnostic procedures and treatment. Those centers work in close cooperation with the ERNs they belong to.

From TransplantChild, we made an effort to collect the information about the availability and means to receive and take care of some of the paediatric patients from the different centres of the ERN. If your centre has the means to take care of some of these patients, we would appreciate it if you could contact us at coordination@transplantchild.eu.
Visit the dedicated website
New TransplantChild publication
Six centres of the ERN TransplantChild participated in this study which aims to examine the prevalence of autoantibodies (AAB) after paediatric liver transplantation, and to determine their relation with the outcome. Previous studies regarding the prevalence of AAB after paediatric liver transplantation show inconsistent results and while some of them found an association between AAB and autoimmune liver disease, others were not able to draw such connection. The aim of this multi-centre  study is to expand current knowledge on the prevalence, associated factors, and clinical impact of AAB after paediatric liver transplantation.
From the TransplantChild coordination team we wold like to congratulate the researchrs from Hannover Medical School (Hannover, Germany), Azienda Ospedaliera Papa Giovanni XXIII (Bergamo, Italy), Hospital Necker Enfants-Malades (Paris, France), The Children’s Memorial Health Institute (Warsaw, Poland), Institute of Clinical Medicine (Vilnius, Lithuania) and IRCCS Pediatric Hospital Bambino Gesù (Rome, Italy) for their publication and thank them for their contribution.
Do not miss the opportunity to read this interesting article!
Read article
SAVE THE DATE: Monthly Live Case Discussion
Next Session 26th May
Last Thursday, 28th April we held our Monthly Live Case Discussion on Transplantation from a non-heart-beating donor. From the TransplantChild coordination team we want to thank  Dr Bunty Ramchandani from La Paz University Hospital and Dr Juan Miguel Gil Jaurema from Gregorio Marañón University Hospital for presenting such interesting cases. We will be updating the information during the upcoming days.
If you want to join the discussion, or if you want to present a case in a future session, please contact us at coordination@transplantchild.eu. We hope you could join us at the discussion and share your experience in the field.
News & Events
Peter e-learning course
The PETER e-learning course is already available on our Moodle platform. In this course, you will find all the necessary information to use the registry: training material, video tutorials, user manuals, etc.
If you do not have an e-learning account yet, please send us an email to e-learning@transplantchild.eu and we will create it for you.
Access the course
 ERN Activities

 

Exchange Programme
 

 
The ERN Exchange Programme 2021-2022 is currently underway. Its aim is to share knowledge and stimulate collaborations between healthcare professionals within the ERNs. Professionals can further their knowledge applying for an exchange with a centre that can provide the necessary knowledge, expertise or facilities. Over 1000 "Travel packages" of 5 working days are available to healthcare professionals who wish to pursue a short term training stay.
In 2021 and 2022, three different rounds of exchanges will take place between professionals of Healthcare Providers that are members or affiliated partners of an ERN. A NEWSLETTER with more information about the programme has been issued. Don't miss this opportunity!
Visit the TransplantChild site to learn more about the exchange programme
Learn more
11th European Conference on Rare
Diseases & Orphhan Products
Organised by EURORDIS, the ECRD is recognised globally as the largest, patient-led rare disease policy event in which collaborative dialogue, learning and conversation takes place, forming the groundwork to shape goal-driven rare disease policies and allow for important and innovative discussions on a national and an international level to take place.

Leading, inspiring and engaging all stakeholders to take action, the Conference is an unrivalled opportunity to network and exchange invaluable knowledge with over 1500 stakeholders in the rare disease community – patient advocates, policy makers, researchers, clinicians, healthcare professionals, healthcare industry representatives, academics, payers, regulators and Member State representatives.
The next ECRD will take place fully online from 27 June to 1 July 2022.

Registration open until June 12th
Visit site
ERICA Collaborative inter-ERN Research Wall
ERICA aims to promote collaborative inter- ERNs research projects. It is therefore crucial to have a centralised location to announce any new project and search for collaborators. A specific web page has been created for this purpose on the ERICA website Research Wall.
It provides basic information about the open calls for collaboration as well as contact details of the project PI. Please note that only inter- ERNs collaborative projects will be advertised via this research wall. The new projects will be regularly announced in the ERICA newsletters and twitter. 
Additional info and updates at the ERICA website
Visit site
EJP RD Events
The European Joint Programme on Rare Diseases (EJP RD) brings over 130 institutions to create a comprehensive, sustainable ecosystem allowing a virtuous circle between research, care and medical innovation. The EJP RD has two major objectives:
  1. To improve the integration, the efficacy, the production and the social impact of research on RD through the development, demonstration and promotion of Europe/world-wide sharing of research and clinical data, materials, processes, knowledge and know-how
  2. To implement and further develop an efficient model of financial support for all types of research on RD (fundamental, clinical, epidemiological, social, economic, health service) coupled with accelerated exploitation of research results for benefit of patients.
The EJP-RD organises a series of events in order to promote research on Rare Diseases, such as certified workshops or funding opportunities. Do not miss your chance to participate in these events and get involved with the EJP RD.
Visit the EJP RD site for more information
Upcoming events
 Webinars:
Scheduled webinars:
The next TransplantChild webinar will be held on Wednesday, May 11th at 14:00 CET. This webinar on "Liver transplantation for metabolic diseases" will be presented by Prof. Alastair Baker, Paediatric hepatologist at King's College Hospital in London, England. Do not miss the opportunity to attend to this interesting webinar!

TransplantChild webinars are a series of videos from ERN TransplantChild that promote the dissemination of insights and knowledge regarding paediatric transplantation. We are always looking for ideas and topics, if you want to know about a particular topic or, even better, can share your knowledge about a topic: please get in contact with e-learning@transplantchild.eu and we will set a date!
Latest Webinars:
03/03

Dr Eduardo López-
Granados
 
Tolerance Induction and Monitoring in Paediatric Solid Organ Transplantation (TIMPSOT): Survey results

18/02
 
Dr Patricia Costa Vaccines in paediatric solid organ transplant candidates and recipients

15/02
 
Dr José Jonay Ojeda &
Dr Lars Wennberg
Launch of Monitoring 2021 exercise and TransplantChild awards
01/02 Dr Hubert van der Doef Portal vein complicaitons after paediatric liver transplantation
Visit our YouTube channel to find more webinars
Visit channel
Share this Newsletter:
Share Share
Tweet Tweet
Share Share
Forward Forward
Follow us on social media:
TransplantChild
Twitter
LinkedIn
YouTube
Website
Email
Like ERN TransplantChild - Newsletter #47 on Facebook

Copyright © 2022 ERN TransplantChild, All rights reserved.


Want to change how you receive these emails?
You can update your preferences or unsubscribe from this list
by contacting us at coordination@transplantchild.eu

Email Marketing Powered by Mailchimp






This email was sent to <<Email Address>>
why did I get this?    unsubscribe from this list    update subscription preferences
ERN TransplantChild · Paseo de la Castellana 261 · La Paz University Hospital · Madrid, Madrid 28046 · Spain

Email Marketing Powered by Mailchimp