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Newsletter July 2019

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2019 call for membership to the existing ERNs

The European Commission will launch in the coming weeks the first call for new members to join existing 24 ERNs. The process of becoming a member of an ERN is defined in the Implementing Acts: a healthcare provider (HCP) wishing to become a member of an ERN will have to pass an assessment process based on the established criteria.
More information about the call

ERNs integration into the national health systems and cooperation with industry

The ERN Board of Member States adopted updated guiding principles to frame collaboration between the ERNs and the industry, through a revision of its 2016 statement on the matter. It also adopted a new statement concerning recommendations and good practices to foster the integration of the ERNs in national healthcare systems. These important decisions were taken at the ERN Coordinators and Member State meetings that took place in Brussels.
Check the complete article
ERN Activities

Workshop on Registries for ERNs

This workshop took place in Brussels on July 18th and was organised under the ERN Research Working Group - Registries Task Force and hosted by the DG Santé. The purpose of this meeting was to give the ERNs guidelines for the preparation of the registries and proposals. Both the Joint Research Centre (JRC) and the European Joint Programme (EJP) participated in the event.

Clinical Practice Guidelines Status

Our Clinical Practice Guideline (CPG) on "Immunosuppression strategies to reduce toxicity in pediatric SOT and HSCT" is progressing as expected! On July 31st, the Screening by title and abstract was finished, after reviewing more than 55,000 articles. The next phase, consisting on the Screening by full text, has already been started and should be completed by the end of September.

Available Webinars

Healthcare working group
04 04 2019 - "CPMS TransplantChild activity"

24 01 2019 - “Results of European Paediatric
                      transplantation Map"

15 11 2018 -  “PTLD Audit Results”
Clinical practice guidelines working group
06 06 2019 - "Conflict of Interest"

25 04 2019 - "How to use COVIDENCE to screen the
                      records for the CPG"

04 04 2019 - "Critical appraisal of Clinical Practice

21 03 2019 - "Key issues"

07 02 2019 - "Training programme"

08 11 2018 - “CPG Development on
                      Immunosuppressive strategies in
                      paediatric transplantation”
Research working group
07 03 2019 - “Promoted research: pitfalls and
                      opportunities in the whole European
                      research scenario”

18 10 2018 - “DG Sante-promoted mapping of
                      Research Capabilities of ERNs.
                      TransplantChild situation”
Education and Training working group
24 04 2019 - "Action and annual plan"

15 02 2019 - "How to design EaT activities from a
                      transversal approach, Hospital La Paz

05 12 2018 - “Education and Training gaps, results
                      from TransplantChild physician and
                      nurses survey”
Networking & Knowledge working group
13 06 2019 - "Human capital"

22 03 2019 - "Knowledge sharing"

19 12 2018 - “Critical Knowledge”
Quality and Safety
11 04 2019 - "Perceived quality by patients, families
                      and relatives"

17 01 2019 - "Indicators and evaluation criteria for

11 10 2018 - “Quality and safety Survey”
ERN IT platforms and registry pills
27 06 2019 - "TransplantChild registry proposal"

20 06 2019 - "ERN Collaborative Platform (ECP)"

25 04 2019 - "CPMS new features and activity report"

01 11 2018 - "Overview CPMS and Virtual

Research funding pills
05 06 2019 - Next Research European Calls

03 01 2019 - Research funding office pills

13 09 2018 - Next Research European Calls
Show full Webinar Calendar
Upcoming Events

Next Webinars 



(4pm CET)


Aug 07

CPG WG meeting: “Screening by full text”

Aug 14

Research funding office pills: “Horizon 2020 calls”

Aug 22

ERN IT platforms and registry pills: “Draft proposal for New call”

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