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Newsletter February 2019

1st TransplantChild Course
“A transversal approach on Paediatric Transplantation”

09th of May 2019 -  La Paz University Hospital - Madrid Spain

The main aim of this course is addressing training for medical professionals in the area of paediatric transplantation (PT) with a cross-cutting approach that allows a multidisciplinary view of most relevant topics in the phases of transplant and the practical knowledge to better clinical practices. This course provides skills to perform a common and transversal approach to all types of PT procedure. The latest information on the donor graft optimisation and engineering, new tools of patient allograft tolerance, and families, patient and healthcare team psychosocial care will enable participants to review and update in paediatric transplantation.

More information About the Course
See TransplantChild Course 2019 - Full Programme
News

Participation on the IX International Congress on Orphan Drugs and rare diseases

On February 13, 14 and 15, 2019, the IX edition of the International Congress of Orphan Drugs and Rare Diseases, the most qualified experts, industry representatives, administration and patient associations took place in Seville, Spain. They have met to discuss the challenges we have to overcome in dealing with rare diseases. TransplantChild had the intervention of Dr. Jara in relation to the European Reference Networks and their role in the European framework context of current policies for rare diseases and highly complex procedures.

28 February 2019 Rare Diseases day

This year Rare Disease Day was celebrated by patient groups, policy-makers, healthcare professionals and industry representatives in a record 101 countries. The theme this year was “Bridging health and social care” which focused on bridging the gaps in the coordination between medical, social and support services in order to tackle the challenges that people living with a rare disease and their families around the world face every day. The mosaic was supported by the EJP RD members and had the participation of the TransplantChild team.

Visit the official Rare Diseases Day website
ERN Activities

Available Webinars
Healthcare working group 24 01 2019 - “ Results of European Pediatric transplantation Map

15 11 2018 -  “PTLD Audit Results”
 
Clinical practice guidelines working group 07 02 2019 - "Training programme"

08 11 2018 - “CPG Development on Immunosuppressive strategies in pediatric transplantation”
 
Research working group  07 03 2019 - “promoted research: pitfalls and opportunities in the whole european research scenario”

18 10 2018 - “DG Sante-promoted mapping of Research Capabilities of ERNs. TRANSPLANTChild situation”
 
Education and Training working group 15 02 2019 - ” How to design EaT activities from a transversal approach, Hospital La Paz experience”

05 12 2018 - “Education and Training gaps, results from Transplantchild physician and nurses survey”
 
Networking&knowledge working group
19 12 2018 - “Critical Knowledge”
 
Quality and Safety 17 01 2019  - "Indicators and evaluation criteria for activity"

11 10 2018 - - “Quality and safety Survey”
 
IT platform pills 01 11 2018 - "Overview CPMS and Virtual consultations"

06 09 2018 - "DEMO CPMS FOR NEW USERS TRANSPLANTCHILD"
 
Research funding pills
03 01 2019 - Research funding office pills

13 09 2018 - Next Research European Calls
 
Show full Webinar Calendar 2018-2019

First course “Hot topics in pediatric transplantation (solid organ and hematopoietic stem cell transplantation)”  

Module 6: Immunosuppression treatment
Upcoming Events

6th TransplantChild - Board of the Network


10th - 11th of May 2019 -  Face to Face Meeting
 La Paz University Hospital
Madrid, Spain


 If you are not registered yet please contact us: coordination@transplantchild.eu.  
Next Webinars 

March

Date (4pm CET)

 

Mar 14

Networking/Knowledge management WG meeting

Mar 21

Monthly Transplantchild update

Mar 28

E-learning sessions: Module 6

 

April

Date (4pm CET)

 

Apr 04

Healthcare WG meeting

Apr 11

QaS WG meeting

Apr 18

Monthly Transplantchild update

Apr 25

ERN IT platforms pills

Copyright © 2019 ERN TransplantChild, All rights reserved.


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