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ILMI eBulletin 25th October 2018

Welcome to the 26th ILMI eBulletin.
 Please folks if you like our eBulletin give us a reaction and share share share. All the best from the ILMI team.

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Updates from ILMI


Leader Training
On Saturday the 20th of October we were delighted to welcome our first group of Leaders to our Independent Living Leader Training programme. This inaugural session took place in Dublin and was met with enthusiasm by all with a particular focus placed on the “pleasure of sharing life experiences with peers.”
Our Independent Living Leader training programme has been developed to put us back in control of our PAS. By providing us with a range of information on Independent Living and our role as a Leader it aims to give us the confidence to lead our services in an effective way. A full Leader Manual accompanies this training and is freely available to individuals who take part in a session.
Seven further training sessions will now be taking place across the country to the end of November. Upcoming sessions include:
•             Leitrim, November 7th
•             Clare, November 13th
•             Galway, November 22nd
•             Sligo, November 27th
•             Limerick, November 28th
•             Donegal, November 29th
•             Cork, November 30th
Please note that if you are interested in taking part in one of these one-day training programmes you must pre-book. Some of the sessions are already full so it is important you register your interest as soon as possible by contacting us at


FLAC Conference on the Public Sector
Staff and members of ILMI participated in the FLAC (Free Legal Advice Centres) on the legal implications of the public sector duty in Irish law which took place on Friday 19th October. The Public Sector Duty potentially will have positive implications in the development of more inclusive public services, and it is important that ILMI develop a strong understanding of the Duty.
Section 42 of the Irish Human Rights and Equality Commission Act (often referred to as the Public Sector Duty) states that public bodies (Government Departments, ETBs, HSE etc) will have to take regard of all of its functions in order to a) eliminate discrimination,
b) promote equality of opportunity and treatment of its staff and the persons to whom it provides services, and c) protect the human rights of its members, staff and the persons to whom it provides services.
Section 42 (2) of the act states that public bodies will need to assess the human rights and equality issues in relation to its functions,  put plans and policies in place to address these inequalities and report on progress on an annual basis. 
The   public   sector   duty   requires   public   bodies   to   move   beyond   a reactive approach to equality and human rights issues to also pursue a proactive approach. Legislation to date has required them to address issues of discrimination and human rights violations after they had occurred. A Public Sector Duty requires them to plan to avoid such issues   in   a   proactive   manner.   It   requires   them   to   plan   for   more ambitious goals beyond the elimination of discrimination and human rights violations and to work for equality and the fulfilment of human rights
However, despite this legislation being 4 years old, as yet we have no tangible instances of any Government body having fulfilled its duty. As part of the conference, IHREC spoke of their role in providing guidance to Public Bodies and the pilot programmes which will be completed later this year and will inform how the Duty could be rolled out. Inputs also looked at the impact of a similar Equality Duty in the UK.
ILMI is a member of the Equality and Rights Alliance which has published a Civil Society Guide to the Duty which can be accessed here


What WE in the Independent Living Movement Ireland (ILMI) want for our Personal Assistance Service! Campaign one pager here. Now do you want to get involved?  Contact us on

ILMI Housing Working Group: Call for Participation

This working group is nearly fully subscribed but there are still one or two spaces.

Ireland is currently in the midst of a housing crisis- but as was said at our ILMI Conference in September- housing has always been a crisis for disabled people. ILMI members have identified housing as one of our core strategic policy campaigns for the next three years and we are keen to build a collective approach on housing.

Join the ILMI Housing Working Group- Have your voice heard!

We are calling people to become involved in a national housing consultation group (regional groups via zoom if necessary) on Wednesday 5th of December at 12 - 2pm in ILMI offices Carmichael house. The aim of this group would be to develop a collective discussion around housing for disabled people and our housing strategy. We need the participation of people with real lived experience and to generate discussion around the housing needs of disabled people in general. In the coming updates of the eBulletin we will be providing an update on the analysis of the plans from our local authorities.

If you are interested in becoming involved in this group email our policy officer


Make Work Pay: Update


In 2015, the State launched the Comprehensive Employment Strategy for People with Disabilities 2015-2024. This strategy sets out a ten year approach to ensuring that people with disabilities, who are able to, and want to work, are supported and enabled to do so. A key strategic priority within the Comprehensive Employment Strategy is to ensure that work pays for people with disabilities.


The Department of Social Protection was charged with establishing an interdepartmental expert group, with an independent chair, to examine the complex interactions between the benefit system, including the Medical Card, the additional costs of work associated with a disability, and the net income gains in employment. In addition, the group was charged with considering practical solutions to ensure that people with disabilities who are interested in working can compare their take-home pay to their welfare entitlements and can be reassured that benefits will be seamlessly restored if the employment does not work out for them.


 In April 2017 the government released a report called make work pay. The report makes 24 recommendations and under the make work pay initiative, if you move from a long-term disability payment (see list below) to a job, you can keep your entitlement to Free Travel for a period of 5 years, provided you have a registered public services card.

    Disability Allowance
    Invalidity Pension
    Partial Capacity Benefit (from Invalidity Pension)
    Disablement Benefit paid along with Incapacity Supplement
    Transfer from Disability Allowance or Invalidity Pension to a Community Employment, SOLAS or Back to Work scheme

However, we have been made aware that in at least one case  that a disabled person who moved from a long-term disability payment to securing full-time employment subsequently lost their free travel until they raised the issue with the Department of social protection. This resulted in the reinstatement of their free travel entitlement for 5 years after under the make work pay initiative.


Employment is a huge issue for disabled people. A report by the ESRI  showed that only 31% of disabled people are employed compared with 71% of the general population. If policies like Make Work Pay are going to have an impact, we as a national representative disabled person's organisation need to develop our collective analysis of where the system is failing disabled people.


Employment is one of the four pillars of independent living and a key strategic campaign issue for our new strategic plan . Over the course of 2018, we supported members to engage in consultations across the country in relation to engaging younger disabled people on employment as part of the Make Work Pay strategy.


ILMI will create a discussion space in due course on employment in order to build a strong collective analysis.


For more information email our policy officer



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Center for Independent Living · Carmichael Centre · North Brunswick Street · Dublin, D D7 · Ireland

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