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ILMI eBulletin 
8th April 2022


IMAGE: shows the text PASNOW - How You Can be Involved with the ILMI Logo

The ILMI #PASNOW 30 days of action is well under way!
This is how you can get involved

 
IMAGE: shows a yellow painted circle with the text #PASNOW


What is #PASNOW?
PAS NOW is an ILMI Campaign to have Personal Assistance Services (PAS) recognised as a human rights and equality issue with legislative protection for disabled people to access Personal Assistance Services (PAS).
 
Over 30 Days, individual video testimonies submitted by disabled people across the country are being launched on all our social media channels. A strong, consistent message from disabled people calling for the same thing, #PASNOW. Each video clip tells its own unique story as to what Personal Assistance Services (PAS) means to each of us and why it should be protected by legislation.
 
The 30 Days leads up to our #PASNOW Webinar on the 5th of May at 1pm. This Webinar will invite all our political representatives to come along and hear why protection and legislation to ensure our right to access PAS is vital.


Get behind the 30 Days Campaign. Every day since April 5th we have been releasing a video on our social media channels - Twitter (@ILMIreland), Facebook (@ILMIreland) and Instagram (@ilmireland). If you could Like, Retweet or Share from our social media pages that would be fantastic. 
 
We need allies in this campaign. By watching the 30 Days Videos you can learn more about the vital role PAS plays in our lives. Promote the need for #PASNOW as a human rights and equality issue.


Want to do more?
If you would like to tag all of your local politicians on each of your posts we can help, by sending you a county social media tag list. Most importantly please talk about the campaign with your colleagues, friends and family. Even if you would like to simply invite your local politician to the #PASNOW webinar on May 5th that would be great. Thank you for your continued support on this, as together we will get it over the line. Nearly forgot! Don’t forget to use the campaign hashtag #PASNOW!

We are united in a push for legislation to protect our right to access PAS. If you are not already part of this campaign and would like to show your support, please get in touch. The campaign is open to everyone - simply email  susanobrien@ilmi.ie 


IMAGE: #PASNOW webinar invite
 
The Webinar:

To sign-up to attend the Webinar on May 5th register at:
 https://us02web.zoom.us/webinar/register/WN_8AkVunO5QZ-E5du3BpUsng
After registering, you will receive a confirmation email containing information about joining the webinar.
Remember #PASNOW is open to everyone it is only by uniting that we can finally realise protection for our right to access.


Videos released so far, just click on the name to watch:
ILMI #PASNOW Clare - Ann Marie Flanagan
ILMI #PASNOW Offaly - Paddy Slattery
ILMI #PASNOW Dublin - Shelly Gaynor
ILMI #PASNOW Galway - Arun Assan

 
Personal Assistance Services (PAS)
Have been available in Ireland since 1992. However, the availability of PAS remains dependent upon funding and the service is still essentially operated as a pilot project. 
Restrictions on availability have resulted in the average number of hours delivered being just 3 hours per day with 44% of disabled people receiving 42 minutes per day, or less. 
If I need my PAS to live my life, how can I maintain my independence with minimal hours and no legislative protection for my service?

#PASNOW is about ensuring PAS is viewed as an equality and human rights issue. It is about protecting our services and ensuring their legislative protection and availability to all disabled people. The five key asks we have as part of the campaign are:

  1. Define: A universal accepted definition of PAS, which places us at the centre of any service provided and is directed by us to meet our needs to live independent lives. PAS is about providing us with the necessary supports, both inside and outside of our homes to enable us to live a life of choice, dignity and respect. PAS also needs to be separated from Home Help and Home Care with its own ring-fenced budget.
  2. Legislate: Introduce legislation to guarantee us the right to a PAS as per Article 19 of the UN Convention on the Rights of Persons with Disabilities (UNCRPD). 
  3. Invest: Increase the budget for PAS by €12.5 million annually to provide an additional 500,000 hours each year to enable us to lead real independent lives.
  4. Standardise: Introduce a single standard assessment of need across all HSE CHO areas. This must include the provision and support for independent assessment of need as per the Disability Act 2005 and the creation of systems that allow for portability of services across CHO areas, meeting our social, personal and employment needs with no bureaucratic barriers.
  5. Promote: Ensure that we are all made aware of the availability of PAS, in order that those who wish to lead to live their lives independently can access the necessary supports to do so.

 
#PASNOW Campaign Progress to date includes:
 
Workshops held across the country to develop our 5 PAS NOW Campaign asks.
Representation and campaigning workshops to build a shared voice on how to campaign for PAS NOW!
 
Working with NUIG to develop a Position Paper on Legislating for the Right to PAS.
 
Private Members Bill developed with the support of Thomas Pringle TD.
Dail Motion on PAS Passed.
 
27 Local Authorities working with us to support a Motion in favour of our Right to access PAS.
 
4 remaining Local Authorities about to table a Motion in support of our right to access PASNOW


 
#PASNOW includes everyone - nobody gets left behind.



IMAGE: Graphic shows the PAS NOW Information leaflet with the ILMI logo. The leaflet is yellow and pink with a purple hand in the background.

For more detailed information click here

For any questions no matter how small please reach out, we would love to hear from You! email susanobrien@ilmi.ie 



"Longford disabled activist calls for recognition of the right to access Personal Assistance Services in Ireland"

"PAS was first introduced in Ireland in 1992 as a pilot programme," ILMI Policy Officer and PAS user James Cawley explained.
 
 
"However, 30 years later it still operates on the same basis with no legislative protection for its provision. Instead, many PAS users rely on a piecemeal service, which can be removed with no warning at the discretion of government directives.
 
"It's hard to put into words what that means to a PAS user," he added.
 
"Essentially, we are living day-to-day always expecting that call or knock on the door to say our independence has been removed. As a husband, employee, and contributing member to society that is truly terrifying."
 
Full article in the Longford Leader can be read here



Strategies for change Masterclass

IMAGE: screenshot of the Zoom class participants

The second SFC Masterclass "Understanding the Individual Model of Disability" and its effects on Disabled People was delivered by Mr. Paul Fagan. Paul explained the origins of the Individual and Charity Model of Impairment. He reminded us of the impact that this ideology has had on our lives as disabled people. Paul spoke about the stigma and oppression experienced in times gone by which sadly is still experienced by many disabled people today.  Paul asked us to be cognisant of own internalised oppression as individuals.
 
In addition, he spoke about the importance of the collective voice and experience of disabled people and their allies as a powerful tool to challenge the charity model in order to influence systemic and sustainable change. Attendees shared this personal reflections, experiences and stories which reiterated the importance of peer support within the Disability Rights and Independent Living Movement.


ILMI ONSIDE Project social inclusion workshop

IMAGE: Screenshot of Zoom meeting participants
 
On Thursday 7th April on week 5 of this cohort's ONSIDE project social inclusion programme, participants were joined by Ulster Bank and Security Engagement Manager, Eve Curran.   Eve shared valuable online banking tips with participants, as well as advice on how to keep secure online.  

Committee on Disability Matters

IMAGE: Screenshot Jacqui Browne in action at the meeting.

On Thursday 7th April an extremely robust and clear discussion was held in front of the Committee on Disability Matters. It was in relation to the topic “Disabled Persons Organisation's and Implementation of the UNCRPD”. You can watch the video on this link. For the full Opening statement click here. It was read out by Lianne Quigley (Sign Name: Smiley) Deaf Interpreter (Irish Sign Language), Chairperson of Irish Deaf Society, Organiser of Dublin Deaf Theatre, Deaf Activist and part of the DPO Network and  Jacqui Browne ILMI board member, part of the #UNCRPD Disability Advisory Committee in IHREC and Chair of the DPO Network.  
 
The meat and potatoes of the entire session was about the true Value of Disabled Persons Organisations. How they brought an authentic insight to Government and how they needed to be properly funded in order to provide that key and vital expertise. The other hot topic was  about how a more representative mix of people in actual decision making roles with different experiences, backgrounds and lived expertise brings more to the table and leads to truly informative changes. Jacqui Browne qualified this discussion perfectly by explaining how resourcing and developing the capacity of DPOs has to be open, transparent, designed and developed properly - that’s what needs to happen simply put “nothing about us without us”
 

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