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Welcome to our August 21st E-Bulletin

What's In This Issue:
HSE Personalised Budgets Demonstration Project

The HSE is looking for up to 180 disabled people to participate in the Personalised Budgets Demonstration Project over a two year period. The Project is running in two phases, with 90 people taking part in each phase. Phase 1 commenced in October 2019 and Phase 2 will commence from September 2020.

What is a Personalised Budget?

A personalised budget is an amount of funding that disabled person may be considered for by the HSE. If a person qualifies for a personalised budget they can make their own arrangements to meet their support needs, instead of having their needs met directly for them by the HSE and HSE funded services providers. Disabled people currently in receipt of HSE funded services can apply for a personalised budget if they so choose or they can choose to continue with their traditional services from the HSE or a HSE funded service provider.

Who can apply?

Applications are welcomed from:

  • Disabled people that are currently in receipt of HSE funded services; provided either directly by the HSE or through the non-statutory sector (including day services, residential services, respite services, rehabilitative training or personal assistance).
  • Young disabled people leaving school in 2020 that have a commitment to a funded day service can also apply.

If you are interested in submitting an Expression of Interest, please complete the Expression of Interest form and submit before September 7th 2020. This form is available in PDF here. An easy to read PDF is also available here. Please note the form is in PDF format. However, if anyone has any difficulty accessing it you can email for an alternative format.

For more details, on the HSE pilot please read here.

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ILMI Leader Training: Callout for Trainers

Photo shows the call for people to participate in the ILMI Leader Training.

Are you interested in promoting the Independent Living Philosophy? Do you have a passion for Independent Living (IL) and protecting our Personal Assistance Service (PAS)? Then you may be the person we are looking for. We are working to establish a panel of Independent Living trainers across Ireland, who will work with us on an ongoing basis to deliver our Leader Training Programme.

What is the ILMI Leader Training Programme?
In ILMI we recognise that leading our own PAS is a complex role, which requires recognition of the unique relationship that exists between our PAs and us as Leaders. In response we have developed a distinctive training programme that recognises the challenge this presents and the information we need to take our first step toward IL. ILMI’s Leader Training programme aims to put us back in control of our PAS. By providing us with a range of information on Independent Living and our role as a Leader it aims to give us the confidence to lead our services in an effective way.
This programme has been successfully delivered across Ireland during 2019 and into 2020. As a reaction to COVID19 and to ensure ongoing support for Leaders who were interested in participating but limited by travel restrictions the programme went virtual earlier this year. The first phase of the training has now been rolled out and we are looking to progress with suitable Leaders delivering the virtual second phase.

Who are we Looking for?
If you think you may be the person to support us in the rollout of our Leader Training programme, we want to hear from you! As this training is specific to PAS ideally you would:

  • Be in receipt of a PAS.
  • Have a passion for Independent Living.
  • Have an awareness of the work of ILMI.
  • Have the confidence to deliver relevant material on Independent Living online to other potential Leaders and answer any questions they may have.
  • Be proficient in Microsoft Office.
  • Have a working knowledge of Zoom.
No previous training experience is required as we will work with you to ensure you are confident in delivering our programme online.

I'm Interested! What Next?
Training will commence in September and run throughout October into November so you would need to have flexibility in your availability during this time. If you would like to get involved then simply email James Cawley with your details.

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PAS Now!

ILMI are currently working with a number of Local Authorities to ensure our Right to Personal Assistance Services (PAS) is supported at a local level. This follows on from our #PASNOW campaign, which saw Deputy Thomas Pringle bring an historic Motion before the Dail in 2019 requesting support for our right to PAS. As we are aware that Motion got unanimous support at national level and we are now working to ensure that similar support is secured at a local level. 
On December 9th Galway City became the first Council to support the Motion, which was quickly followed by Longford County Council. To date one third of Local Authorities have voted in support of the Motion.
If you would like to work with us to ensure your Council is actively supporting your right to PAS in 2020 then do let us know and we will be happy to assist you. You can contact Susan by email or by calling 086 1712648 for further information.

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ILMI Women's Group

Photo shows the call for people to participate in the ILMI Women's Group

ILMI are delighted to see the growth of the ILMI Women''s Group, which allows people to come together and discuss the issues they face in a safe and confidential space. This peer-led community will host it's fourth meeting on August 27th at 11am so why not come along? If you would like further information or wish to register your interest in taking part then please contact our Peer Mentor Shelly Gaynor at
Full Spectrum

Image shows the text Loudly Support One Another.
Full Spectrum is a new national network for disabled people who identify as Lesbian, Gay, Bisexual, Trans*, Intersex, Asexual, Non-Binary, or simply non-heterosexual in orientation / gender identity.
We have a regular virtual community drop-in space by and for disabled LGBTI+ people. This will be a safe and welcoming peer-support space where we come together to get to know each other, share experiences, support one another and build a community identity.
If you identify as disabled, and identify as LGBTI+ (or any other letter of the alphabet!), then you are welcome to join our space of equals. There are currently three people acting as a steering group; Maureen, Niall and Isolde. At least one of us will be present at each session to facilitate discussions and deal with the inevitable technical hitches. Our next meeting is Tuesday August 25th, from 7.30pm to 8.30pm via Zoom.
We are delighted to be supported by ILMI (Independent Living Movement Ireland), You do not need to be a member of ILMI to take part. For further information, and to register your interest in taking part: email or call / text 085-2277033.* For screen-reader users, the email address is d l g b t q peer 20 20 at g mail dot com – all lower case

Social Nights

Photo shows the text ILMI Social Nights!

Independent Living Movement Ireland are delighted to announce that we will be rolling out a number of social nights from September to December 2020. These spaces are a follow on from our successful Film Club.
These social nights are a great way for disabled people to connect with one and another and have some fun. The social nights will consist of a variety of guest speakers/performers from film, fashion, music, sport and the culinary industry and much more.
The exciting line-up includes:

  • Paddy Slattery who is a Filmmaker – Writer/Director/Producer his most recent film is “Broken Law” currently in Irish Cinemas Nationwide.
    • Date: 3rd September from 8pm-9pm
  • Rory Gallagher a Donegal Songwriter/Performer, formerly The Revs.
    • Date: 17th September from 8pm-9pm.
  • Clara Holmes is a fashion model and public speaker. Clara is passionate about self- love, body positivity and the diverse representation of all bodies within the fashion and beauty industry.
    • Date: 1st of October from 8pm-9pm.
  • Christian O Reilly is a playwright and screenwriter who has many successful films such as “Sanctuary” and “Inside I am dancing”
    • Date: 15th of October from 6pm-7pm.

Other guest speakers to be announced over the next few weeks.

For more information on the social nights or if you would like to register for any of these spaces, please contact

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Cork Community Platform

ILMI are creating an online platform to create an opportunity for disabled people in Cork City and County to stay socially connected and find out information on the various supports and services in your local community. We have guest speakers from mainstream services that provide information and talk about what is available to you during COVID-19 and beyond. If you have an interest in this new Cork Community then please register your interest at

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ILMI Photography Course

From August 31st and every Monday at 3pm ILMI are Zooming a 'live' introduction Course to using your mobile phone camera to create a Covid-19 short story by images. ILMI are inviting new participants, and those that took part in our spring photography course, to join photographer & Tutor Dave McKane in creating your very own "I'm the Captain of my own mobile phone 'Reportage' storyteller ship of tales".
Old and new students will be learning to document through a storyboard of mobile photos how disabled adults are experts at tackling the Covid-Crisis. At the end of the course, the photos will be exhibited on ILMI's brand new on-line Hidden-Shadow Art Gallery, which is being developed by ILMI's Dr James Casey, Peter Kearns and our PR/Media guru Maryam Madani.

ILMI Photography Course Tutor Dave McKane will ask students to see themselves as disabled activists wishing to tell a story about positive change in time of Covid-19, through a series of photos about overcoming disabling isolation barriers. Our ILMI Covid-'war-photographers' will be also moving-on to engage with hints and tips for choosing a particular “look” for their projects. Plus, using filters and other image processing techniques, as guidelines for consistent visual story telling and Dave's regular comment and critique on their weekly reportage photo submissions to ILMI's 'Free' course. While the new autumn 8-week course is being funded by Leitrim County Council and ILMI is keen to attract members old and new from the north west, the Monday afternoon 3pm to 4pm workshops are also open to all ILMI members - email your name and phone contact to:

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Step up Ireland's launch event which will examine the welfare barriers to self-employment for Disabled people.

Step up Ireland is a social enterprise that wants to empower disabled adults to start their own businesses as led by them. Step up Ireland was selected as one of the Social entrepreneurs Ireland Academy attendees in 2019. The aim of the event is to offer attendees a greater understanding of the barriers to self-employment and therefore empower them to explore the idea of starting a business. The event will run be led by founder and CEO of Step up Ireland Eric Lambe and the team at Step up Ireland. This webinar will be held over Zoom.

Register here

For further information regarding this event contact via the information below.



Phone: 0858414463


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Lough Ree and the Shannon made accessible!

Photo shows people enjoying the accessible boat on Lough Ree

A fully accessible boat has arrived from Tallinn, Estonia which will allow the Lough Ree Access for All project offer tours to Disabled People, their families, friends and Personal Assistants. They also hope to employ people full time to develop a full range of tours on the water as well as bike hire and guided walking and fishing tours. Lough Ree Access for ALL engaged with ILMI during the project and ILMI were happy to support their application for funding its development. ILMI Policy Officer James Cawley went out on the boat this week to test it.

James said “this project represents a model of inclusion to ensure that disabled people can participate in sporting and tourist activities as part of an Inclusive Ireland, there was engagement throughout its development and the boat is fully accessible and is universally designed, what an experience”.

For more information about the boat contact (043) 332 1734


FB: Lough Ree Angling 'Access for All'

Twitter: @LRAccessforall

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