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MAY EDITION 2020

This month learn about a protein found to be critical for the survival of precursor myelin producing cells in specific parts of the adult brain, how an antibody is reducing the appearance of brain lesions and risk of MS relapses, comparison of pain and fatigue in MS and Neuromyelitis Optica Spectrum and why researchers have high hopes for Biotin Falter.
Also, find out about the latest updates on MSWA group activities, a new service introduction at MSWA and a new feel-good series giving us some different perspectives on self-isolation.
 
Don’t forget to sign up to some of our virtual programs and events!
 
Until the next edition, take care.

RESEARCH NEWS

PROTEINS ON PRECURSOR MYELIN PRODUCING CELLS ARE IMPORTANT FOR THEIR SURVIVAL

A team led by a MS Research Australia funded researcher has been exploring the effect of CaV1.2 (protein) and have found it is critical for the survival of precursor myelin producing cells in specific parts of the adult brain.

Read the full article here

UBLITUXIMAB PHASE 2 DATA SUPPORT SAFETY, EFFICACY IN RELAPSING MS

The investigational anti-CD20 antibody ublituximab effectively depletes B-cells in people with relapsing forms of MS, reducing the appearance of brain lesions and the risk of relapses, a study into clinical trial results suggests.

Find out more

HIGH HOPES FOR BIOTIN FALTER BIOTIN, A COMPONENT OF THE VITAMIN B COMPLEX, HAS PREVIOUSLY SHOWED PROMISE IN PROGRESSIVE MS CLINICAL TRIALS.

While the pharmaceutical company running the second phase 3 trials has had disappointing results, further analysis will likely be carried out.

Read the full article here

PAIN, FATIGUE IN MS AND NEUROMYELITIS OPTICA SPECTRUM COMPARED IN STUDY

Pain appears to be more intense in people with neuromyelitis optica spectrum disorder (NMOSD) than those with multiple sclerosis (MS), while fatigue levels are comparable between the two disorders, a study reports.

Read the full article here

MSWA’S COMMITMENT TO RESEARCH

Over the past 12 years, MSWA has invested more than $17 million to fund research into finding the causes, better treatments and potentially future cures for MS and other neurological conditions.

Are you up to date with our research news?

MSWA's research news

It’s been an interesting couple of months, but we’re all in this together and we are doing just fine!
We’ve been checking in with our MSWA community to see different versions and perspectives of self-isolation.
So far we’ve heard from Brett Johns, Nicolette Murphy and the residents at Hamilton Hill.
 
Read these and keep up to date with our AtHomeWithMSWA editions: 
mswa.org.au/at-home-with-MSWA

UPDATE ON GROUP ACTIVITIES

The decision regarding the suspension of our group activities was reviewed at the end of April. From this review, we have decided not to change our current stance. We look forward to the day we can welcome you to these activities, however we just don’t believe that time is right now. We will continue to monitor health advice with the safety of both our Customers and staff as our priority.
 
Telehealth & Tele-Social services:
Whilst our suspension of all group activities remains in place, we have now implemented a broad range of Telehealth services, including one-on-one services, and some group sessions. Click here to view the MSWA Telehealth services that are currently available.
 
We are also developing a range of services that can provide you with social contact without the need to leave the comfort of your own home (think online games such as bingo, or just a good old fashioned telephone call catch-up). We’ll have more to share on these soon.
 
We would love to help connect you to these new services. If you would like further information, please contact us on 08 9365 4888 or via email - CustomerService@mswa.org.au.
 
Normal eligibility guidelines apply for these services. We are here to help. Please reach out if we can assist you!

GENERAL NEWS

PHYSICAL ACTIVITY, A GUIDE FOR PEOPLE WITH MS

Clinical and research experts have assessed current research findings to provide advice and evidence-based recommendations aimed at empowering people living with MS and potentially minimising the impact of MS on their lives.

Exercise is one way to stay fit and healthy, but for some people living with MS who have limited energy, it isn’t that easy.

This newly developed guide on physical activity forms part of a wider set of lifestyle guidelines currently being developed by MS Research Australia for people living with MS.

View the guide

AUSTRALIAN GOVERNMENT DEPARTMENT OF HEALTH CORONAVIRUS WEBPAGE FOR PEOPLE WITH DISABILITY

The Australian Government Department of Health has launched a new webpage providing Coronavirus information for people with disability.

The webpage provides advice on how to protect yourself from Coronavirus and includes a range of services and support materials on Coronavirus for people with disability.

The Department of Health will continue to add resources as they are developed.

View the webpage

CRISIS RESILIENCE IN MS (C-RIMS) STUDY

The Crisis Resilience in MS (C-RIMS) study is now live. This is where the MS community have the opportunity to voice their health experiences during COVID-19.

Complete the short survey
VIRTUAL PROGRAMS AND EVENTS

MS CARERS SUPPORT GROUP
If you think your carer needs support, ask them to join a support group facilitated by MSWA counsellors.
When: Once a month on Thursdays from 10am – 12pm.
 
Register your interest with Rob on 0419 959 490 or via email: Rob.Orr@mswa.org.au

MS PEER COFFEE CATCH UP
Monthly coffee catch up (coordinated by Members and Peer Support Coordinators) for people living with MS.
When: 10am Saturday mornings (monthly)
 
Register your interest with Dajana on 08 9365 4858 or via email: Dajana.Tesevic@mswa.org.au

SHARE YOUR STORIES
If you have an interesting story that you would like to share with our readers, we would love to hear from you.
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