MSWA Vitality June 2019
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JUNE EDITION 2019
Welcome to June’s edition of Vitality.

This month, read about the first disease-modifying treatment licensed and available for children with MS, the latest research on brain matter, as well as how following a ketogenic diet can improve fatigue and depression for those living with MS.

Also, get up to date on MSWA general news and what programs are available near you.

Until the next Vitality, take care.

RESEARCH NEWS

TGA approval of Gilenya® (fingolimod) as first licensed oral treatment for paediatric MS

Last month the Therapeutic Goods Administration (TGA) approved Gilenya® (fingolimod) for the treatment of children and adolescents 10-17 years old with relapsing forms of MS. The registration makes Gilenya the first licenced disease-modifying treatment for children and adolescents in Australia.

Read more
Areas of inflammation in the brain a grey area

Traditionally a lot of focus in MS has been on the white matter in the brain. New research highlights the role of the grey matter damage within the brain of people with MS. This research possibly uncovers a new autoimmune disease process in MS targeting cells in the grey matter.

Read more

Early intensive treatment gives better outcomes

The early use of high efficacy treatment for MS improves long-term disability outcomes, rather than starting on a moderately effective therapy and escalating to a stronger medication, a recent study suggests.

Read more

Small study shows improvements with Ketogenic Diet in people with MS

A study of people with MS who followed a ketogenic diet (eating high levels of fat, adequate protein, and fewer carbohydrates), reported improvements in fatigue and depression, and also showed reductions in body mass index and inflammatory molecules secreted by fatty tissue.
 
Read more
GENERAL NEWS

Good news! NICE approves Ocrevus (ocrelizumab) for primary progressive MS

Ocrevus (ocrelizumab) has been approved by The National Institute for Health and Care Excellence (NICE) for the treatment of early, inflammatory primary progressive MS in the UK.

Read more
PROGRAMS AND EVENTS
Perth
Tim Ferguson: A Fast Life on Wheels
Tim Ferguson: A Fast Life on Wheels

Laugh, cry and seize the day with discounted tickets to Comedian Tim Ferguson’s show A Fast Life on Wheels.

From touring the world in the Doug Anthony Allstars, to his life as a commercial network TV star, and now an international teacher of screen comedy - through it all, Tim has defied the challenges of Multiple Sclerosis. “I don’t suffer Multiple Sclerosis; it suffers me!” Despite his condition, Tim has vowed to never stop making audiences laugh. And since he got wheels, he has gone even faster!

Dates: Friday, 7 June to Saturday, 8 June
Location: Heath Ledger Theatre, State Theatre Centre of WA

SPECIAL OFFER:

Save $10 per ticket and get Premium Reserve tickets for just $39 or A Reserve tickets for $34 by clicking here or quoting the promo code TIMOFFER when you book via phone on 6212 9292 or in person at the venue box office. Wheelchair/accessible bookings can be made on the same number. Transaction fees apply.

Buy discounted tickets
Wembley
MSWA Members' Forum 2019
Connecting people living with MS to leading experts

Get an update on MS treatments and MSWA sponsored research projects at the MSWA’s annual Members’ Forum.

Free to all Members and their family or carer.

When: Wednesday, 5 June from 9:30am to 12.30pm (morning tea is provided)
Where: Bendat Parent & Community Centre, Telethon Speech and Hearing, 36 Dodd Street, Wembley
Contact: RSVP by Friday, 31 May to Donna Hill
(please advise any medical dietary requirements only)
Phone: 9365 4869
Email: donna.hill@mswa.org.au 

Please note RSVPs are essential for catering purposes.

Email Donna
Wilson
Managing fatigue

Do you have a neurological condition and experience fatigue? Come to this interactive workshop to share experiences and learn more about:

  • what makes fatigue worse
  • how to save energy and decrease fatigue
  • prioritising – using your energy well.
When: Friday, 19 July - 9.30am to 12:30pm
Where: MSWA Wilson –  29 Parkhill Way, Wilson

RSVP: Register your interest on 9365 4854 or email OT.Referrals@mswa.org.au

Email MSWA

Let's ChAT

Do you use a communication aid (picture board to iPad or anything in-between)? The speech pathology team is running an interactive group to share your knowledge and experience.

These group sessions will focus on:
  • Group sharing and discussion
  • Updating software, phrases or words added/changed
  • Practice using your aid in a group setting
  • The provision of educational information
When: Wednesday, 10 July from 10am to 11:30am
Where: MSWA Wilson – 29 Parkhill Way, Wilson

RSVP: Register your interest with speech pathologist Laura Ryan on 0439 093 793 or via email Laura.Ryan@mswa.org.au

Email Laura
Kelmscott
Men's Resource Group 

Come along to meet other men living with a neurological condition. Share challenges, ideas, information and resources. A space for sharing and support.

When: Friday, 21 June from 11am to 1pm (lunch provided)
Where: MSWA Kelmscott – 2/2938 Albany Highway, Kelmscott

RSVP: Register your interest with counsellor Monique Chas on 0447 648 505 or via email Monique.Chas@mswa.org.au.

MSWA may subsidise program funding for members without NDIS funding.

Email Monique
Beechboro, Butler and Rockingham

Cognition Group 

MSWA Occupational Therapy is running a five-week group on:

  • memory
  • attention
  • information processing
  • learning
  • high brain functioning

This program is open to anyone living with a neurological condition. Come and meet others, gain support and learn strategies.

When: Fridays,14 June – 12 July from 10am to 11:30am
Where: MSWA Butler – 245 Butler Boulevard, Butler

RSVP: Register your interest on 9365 4854 or OT.referrals@mswa.org.au

Email MSWA
Assistive Technology 
 
MSWA Occupational Therapy is running workshops to help you learn more about Assistive Technology that could help you with:
  • scheduling, reading, writing and typing
  • cooking and housekeeping
  • grooming and moving around the bathroom
The program is open to anyone living with a neurological condition. Come along to meet others, gain support and learn new strategies.
  
When: Thursday, 27 June 9.30am to 12.30pm
Where: MSWA Rockingham – 5/31 Council Avenue, Rockingham
 
RSVP: Register your interest on 9365 4854 or via email OT.Referrals@mswa.org.au.
Email MSWA
Managing fatigue

Do you have a neurological condition and experience fatigue? Come to this interactive workshop to share experiences and learn more about:
  • what makes fatigue worse
  • how to save energy and decrease fatigue
  • prioritising – using your energy well.
When: Wednesday, 5 June 9.30am to 12.30pm
Where: MSWA Beechboro, 68 Darwin Crescent

RSVP: Register by May 22 on 9365 4854 or via email OT.Referrals@mswa.org.au.  

Email MSWA
Bunbury
Arts and Crafts 

Join us for fun, creativity and connection. All materials provided for painting, drawing, mandalas, origami, collage making. No experience needed, simply come along and enjoy.

Do you have a project that you’d like to work on, or a skill that you’d like to share with others?

When: Tuesday, 18 June from 10am to 12pm
Where: MSWA Bunbury – 1 Mason Street Davenport, Bunbury

RSVP: Register your interest with counsellor Kellie Hansen on 0417 795 131 or email Kellie.Hansen@mswa.org.au.

The program is open to anyone living with a neurological condition. MSWA may subsidise program funding for members without NDIS funding.

Email Kellie
Lego fun! 

Lego play is seriously fun and not just for kids! Come and play with Lego to relax, practice mindfulness and bring yourself into the present moment. Lego play can also improve your motor skills, spatial awareness and problem solving skills.

When: Tuesday, 16 July from 10am to 12pm
Where: MSWA Bunbury – 1 Mason Street Davenport, Bunbury

RSVP: Register your interest with counsellor Kellie Hansen on 0417 795 131 or email Kellie.Hansen@mswa.org.au.

The program is open to anyone living with a neurological condition. MSWA may subsidise program funding for members without NDIS funding.

Email Kellie

Shop right, with ShopRite

Save money on home appliances, technology, new vehicles, ferry tickets to Rottnest, household trade services and much more through ShopRite.
 
If you’re interested the first step is to register with ShopRite. Please note: A small fee is charged to become a ShopRite member.
 
Once you are registered, if you know what you want to buy, then simply contact the ShopRite team on 9300 1221 or via email at enquiry@shoprite.com.au with your appliances and technology products.
 
If you want to browse have a look at the websites for Harvey Norman, Good Guys, Retravision or JB Hi-Fi, choose a product, and contact ShopRite.
 
One ShopRite member recently saved $389 on their new coffee machine and another saved $546 on a fridge. Unlock your discount now to get saving. Terms and Conditions apply.

Contact ShopRite

Step Up for MSWA

The Shadforth Financial Group Step Up for MSWA will take place on Sunday, 30 June 2019 at Perth's tallest building, Central Park.

Join this unique event or share the information with family and friends who may be interested and feel the reward and exhilaration of climbing 1,103 steps to the top of Central Park, whilst knowing you have helped make a real difference to the thousands of Western Australians living with MS and all neurological conditions.

Register your interest
SHARE YOUR STORIES
If you've got an interesting story that you would like to share with our readers, we would love to hear from you.
 
Contact us today
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