MSWA Vitality May 2019
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MAY EDITION 2019

Welcome to May's edition of Vitality.

This month, you’ll get the chance to read about the latest research that’s working towards better understanding, and ultimately treating and solving progressive MS, food allergies that influence the risk of developing MS, and how sweating may contribute to heat sensitivity.

Also, get up to date on MSWA general news and what programs are available near you.

Until the next Vitality, take care! 

RESEARCH NEWS

Solving Progressive MS Webcast

Leading MS experts discuss the state of progressive MS research and treatments, the vital work of the Progressive MS Alliance and what must be done next to develop breakthrough treatments.

Watch video
Ausimmune Longitudinal study

In this episode MS Research Australia speaks to well-known MS Neurologist and researcher Professor Bruce Taylor, who explores the environmental factors that influence the risk of developing MS – including personal behaviours, genetics and treatments.

Watch video

Food allergies may be linked to more MS relapses

People with MS who have food allergies are more likely to have clinical attacks and lesions in the brain than those without allergies or other allergies not related to food, a recent study suggests.

Read more

Impaired sweating may contribute to heat sensitivity in MS

Despite having a similar core temperature to those without MS while resting and exercising, people with MS showed a significantly reduced sweat response which may in part explain the heat-related fatigue and other symptoms experienced by people with MS.
 
Read more
Fatigue linked with worse MS outcomes

MS Research Australia explores one of the most common (and hardest to treat) symptoms of MS, fatigue, which is linked with higher levels of disability, greater levels of depression and anxiety, and poorer cognitive function.


 
Read more
GENERAL NEWS

European Medicines Agency (EMA) - review underway for MS drug Lemtrada®

European neurologists have been cautioned on the use of the MS treatment Lemtrada, while the EMA undertakes their review of side effects in some european patients. If you are currently using Lemtrada your neurologist will discuss this with you in their routine follow up.

Read more
PROGRAMS AND EVENTS
Wembley
MSWA Members' Forum 2019 

This year’s Members’ Forum will give you the chance to hear an update from MS experts on the latest MS treatments and research including MSWA sponsored projects. 

When: Wednesday, 5 June from 9:30am to 12.30pm

Where: Bendat Parent and Community Centre, Telethon Speech and Hearing - 36 Dodd Street, Wembley

RSVP: For catering purposes, please RSVP by Friday, 31 May to Donna Hill via email Donna.Hill@mswa.org.au. Please also let Donna know of any medical dietary requirements.

Free to all Members and their family or carer. 

RSVP
Bunbury
A moment of stillness and listening 

Join us for a restorative sound workshop and allow the harmonizing and relaxing sounds of the Tibetan bowls and koshie chimes to soothe and soften your body. Herbal tea and bliss balls to close the session.

When: Friday, 24 May from 10am to 12pm

Where: MSWA, 1 Mason Street, Bunbury

RSVP: via eventbrite

MSWA may subsidise program funding for Members without NDIS funding.

RSVP
Mandurah
Peer Connect 

A space for sharing, connection and support open to people living with a neurological condition.

Come to one session or to as many sessions as you'd like. Sessions will be facilitated by Monique, an MSWA Counsellor.

When: Held monthly on the last Tuesday of the month from 10am to 12pm

Dates: 28 May I 25 June I 30 July | 27 August I 24 September I 29 October I 26 November

Where: MSWA, Mandurah Centre, 8/8 Magenta Terrace, Mandurah

For more information or to register, please contact Monique Chas on 0447 648 505 or via email Monique.Chas@mswa.org.au.

MSWA may subsidise program funding for Members without NDIS funding.

Email Monique
Wilson

Let's ChAT

Do you use a communication aid (picture board to iPad or anything in-between)? The speech pathology team is running an interactive group to share your knowledge and experience.

These group sessions will focus on:
  • Group sharing and discussion
  • Updating software, phrases or words added/changed
  • Practice using your aid in a group setting
  • The provision of educational information

When: Wednesday, 10 July from 10am to 11.30am

Where: MSWA Wilson, 29 Parkhill Way

For more information or to register, please contact Laura Ryan on 0439 093 793 or via email Laura.Ryan@mswa.org.au

Email Laura

Cognition Group 

The MSWA Occupational Therapy team is running a five-week group at MSWA Wilson Services Centre on:

  • memory
  • attention
  • information processing
  • learning
  • high brain functioning
This program is open to anyone living with a neurological condition. Come and meet others, gain support and learn strategies. Places limited!

When: Friday, 12 April – Friday, 17 May from 10am to 11.30am

Where: MSWA, 29 Parkhill Way, Wilson

RSVP: Register your interest on 9365 4854 or OT.referrals@mswa.org.au

RSVP
Live a good life

Learn strategies to help you bring more happiness into your life, even in the face of adversity. Come to these workshops to learn more about:
  • happiness as a habitat
  • changing your attitude
  • practising gratitude
  • taking one step at a time.

When: Tuesdays, 14 May I 28 May I 11 June I 25 June I 20 August from 2:30pm to 5pm

Where: MSWA Wilson, 29 Parkhill Way

RSVP: Register by May 7 to Sabena Lund on 9365 4858 or via email Sabena.Lund@mswa.org.au.
 
MSWA may subsidise program funding for Members without NDIS funding.

Email Sabena
Beechboro 
‘I’m fine’ Support Group

A space to come together, to support and be supported whilst sharing the MS experience. Each session will include sharing ideas, challenges and solutions. Sessions will be facilitated by MSWA Counsellors.  
 

When: Held monthly on the last Tuesday of the month from 1pm to 2.30pm

Dates: 28 May I 25 June I 30 July I 27 August I 24 September I 29 October I 26 November

Where: MSWA Beechboro, 68 Darwin Crescent

For more information or to register your interest, contact Kathryn Budzinka on 0419 847 897 or via email Kathryn.Budzinska@mswa.org.au.

Afternoon tea will be provided.

MSWA may subsidise this program for Members without NDIS funding.  
Email Kathryn
Managing fatigue

Do you have a neurological condition and experience fatigue? Come to this interactive workshop to share experiences and learn more about:
  • what makes fatigue worse
  • how to save energy and decrease fatigue
  • prioritising – using your energy well.

When: Wednesday, 5 June 9.30am to 12.30pm

Where: MSWA Beechboro, 68 Darwin Crescent

RSVP: Register by May 22 on 9365 4854 or via email OT.Referrals@mswa.org.au.  

Email MSWA
Butler
‘I’m fine’ Support Group

A space to come together, to support and be supported whilst sharing the MS experience.
Each session will include sharing ideas, challenges and solutions. Sessions will be facilitated by MSWA.

When: Held monthly on a Tuesday from 1pm – 2.30pm

Dates: 14 May I 11 June I 9 July I 13 August I 10 September I 8 October I 12 November I 10 December

Where: 245 Butler Boulevard, Butler

For more information or to register your interest, contact Sandra Suverijn on 0417 604 365 or via email Sandra.Suverijn@mswa.org.au.
 
Afternoon tea will be provided.

MSWA may subsidise this program for Members without NDIS funding. 
Email Sandra
Cognition group

The MSWA Occupational Therapy team is running a five-week group on:
  • memory
  • attention
  • information processing
  • learning
  • high brain functioning.
The program is open to anyone living with a neurological condition. Come along to meet others, gain support and learn new strategies.

When: Fridays, 14 June – 12 July 10am to 11:30am

Where: MSWA Butler, 245 Butler Boulevard

RSVP: Register by 7 June on 9365 4854 or via email OT.referrals@mswa.org.au.

Email MSWA
Beechboro, Butler and Rockingham
Assistive technology
 
The MSWA Occupational Therapy team is running workshops to help you learn more about Assistive Technology that could help you with:
  • scheduling, reading, writing and typing
  • cooking and housekeeping
  • grooming and moving around the bathroom.  
The program is open to anyone living with a neurological condition. Come along to meet others, gain support and learn new strategies.
 
When: Thursday, 23 May 9.30am to 12.30pm
Where: MSWA Beechboro, 68 Darwin Crescent
 
When: Tuesday, 28 May 9.30am to 12.30pm
Where: MSWA Butler, 245 Butler Boulevard
 
When: Thursday, 27 June 9.30am to 12.30pm
Where: MSWA Rockingham, 5/31 Council Avenue
 
Register your interest on 9365 4854 or via email OT.Referrals@mswa.org.au.
Email MSWA

Patient Opinion – have your say

The Health Department is currently seeking input into the HealthyWA Patient Opinion Dashboard. The Dashboard will display a summary of Patient Opinion activity for all WA Health Service Providers to gain a snapshot of activity and guide those interested to more in-depth information.

Complete the survey – closes Friday, 17 May.

You can help MS research, even in your sleep!

People often wonder how they can be involved and help out with MS research. One way is by participating in clinical studies or clinical trials underway to better understand MS and investigate potential treatments and interventions.

Find studies looking for participants with MS.


Mindfulness and MS

Curtin University is currently seeking individuals living with MS who are interested in exploring the benefits of mindfulness to participate in an 8-week online program delivered via a live-web session.
 
Eligible participants are individuals who are:
  • Over 18 years of age
  • Diagnosed with MS
  • Fluent in English
  • Have access to the internet
Recruitment is open and the program is due to start in May.
For further information or to find out how you can get involved, please email the research team at MStrials@curtin.edu.au.
 

Supporting young people to pursue their dreams
 
Aspiring young artists with disability are encouraged to apply for the Nexus Arts Grant which is now open. The funding is for metropolitan and regional talent aged between 16 and 25 who are looking to extend their artistic interests, currently studying art or are participating in post school art programs.
 
Applications close 5pm Friday, 31 May.
 
For more information please visit the DADAA website.
 

Team MSWA HBF Run

Team MSWA is recruiting MSWA Members for the annual HBF Run for a Reason on Sunday, 19 May 2019. Join in or share event details with family and friends who can attend on your behalf.

Register your interest.

Step Up for MSWA

The Shadforth Financial Group Step Up for MSWA will take place on Sunday, 30 June 2019 at Perth's tallest building, Central Park.

Join this unique event or share the information with family and friends who may be interested and feel the reward and exhilaration of climbing 1,103 steps to the top of Central Park, whilst knowing you have helped make a real difference to the thousands of Western Australians living with MS and all neurological conditions.

Register your interest.

SHARE YOUR STORIES
If you've got an interesting story that you would like to share with our readers, we would love to hear from you.
 
Contact us today
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