MSWA Vitality September 2019
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SEPTEMBER EDITION 2019

Welcome to the September edition of Vitality.

This month, read about a first-of-its kind study to help patients with Parkinson’s Disease and Multiple Sclerosis (MS) taking place high above the earth; genetic changes related to fat levels in the blood that may contribute to disability progression and a project which looks at DNA changes in individual brain cells.

Also, learn results from a national MS research survey which looks into the needs of people living with MS, their families and carers; how to communicate with your carer and find out what MSWA programs are available near you; as well as a new exciting MSWA event.

Until the next Vitality, take care.
RESEARCH NEWS

Our application to the Essential Medicines List

Efforts to improve access to MS treatments continue.

Read more

First-of-its-kind study in space station seeks to find causes of major diseases

High above the Earth, researchers are conducting a first-of-its-kind study to help patients with Parkinson's Disease and MS on the planet below. The International Space Station experiment is looking for what triggers these diseases by studying how nerve and immune brain cells interact.

Read more

Fats, genes and MS progression

Australian researchers have looked at the Ausimmune/AusLong longitudinal study cohort and identified five genetic changes related to fat levels in the blood that may contribute to disability progression.

Read more

Tackling progressive MS one cell at a time

Associate Professor Justin Rubio from the University of Melbourne speaks about his project which looks at changes in DNA in individual brain cells which have been collected by the MS Research Australia Brain Bank.

Read more
GENERAL NEWS

Meeting the needs of people living with MS, their families and carers

MS Australia has released findings of a national research study: Living with Multiple Sclerosis in 2019.

Read more

Communication with your carer: How to set up great expectations

Old patterns are hard to break, and if you leave things too long, it can feel too awkward to bring them up with your carer.

Read more

Tim's Fast Life on Wheels

Comedian Tim Ferguson talks with Andrea from Link Disability Magazine about his journey with MS, his current film project, and his one-man-show.

“I think part of the show is the sedition of shaking up all the assumptions that people have made about people with disabilities. Nobody stops a guy in a wheelchair.”

Read more

Stretching with MS: Yoga and Pilates around the World

Many people with MS use yoga and pilates to help manage symptoms and relieve stress. Regular practice can make everyday activities easier by improving balance, core strength and flexibility. Breathing and meditation techniques in yoga can also be tools to help manage the emotional challenges of living with MS.

Read more
PROGRAMS AND EVENTS
Como
Save the date - Members' and Volunteers Annual Christmas Party

Christmas is just around the corner, and we would like to celebrate the season with you.

Save the date – more details to come!

When: Thursday, 5 December 2019 from 9.30am to 1.30pm

Where: Lifestreams Christian Church, corner of Murray St and McNabb Loop, Como

Lunch: Two-course meal, drinks, entertainment & a small gift (alcohol-free event)

Cost: Free to Members, volunteers & staff; $20 for others

Perth
MSWA Arena Ascent

MSWA is excited to announce the official launch of our newest fundraising event, the MSWA Arena Ascent! Taking place at the iconic RAC Arena on Sunday, 20 October it will be another opportunity for our amazing supporters to continue raising vital funds for people living with a neurological condition in WA.

With a range of challenges available – from the Mini Ascent, to the Extreme Ascent, to the Wheely Good Course, designed specifically for wheelchair users – there really is something for everyone! Plus, there will also be a real sense of buzz within the Arena with our fantastic Family Festival.

For more information, and/or to register, visit the website: https://arenaascent.org.au

Belmont
Learn about MS

Children aged 6-12, as well as their parents/carers, are invited to attend a hands-on workshop to learn about MS in a fun way.

Learn about:

  • What is MS
  • How MS affects the body
  • How MS treatments work

When: Thursday, 3 October from 10am to 12.30pm

Where: MSWA Belmont – 154 Abernethy Road, Belmont

RSVP: Register your interest with Sabena Lund on 0429 267 970 or Sabena.Lund@mswa.org.au


MSWA may subsidise program funding for Members without NDIS funding.

Register
Ocean Reef

Learn about MS

Children aged 6-12, as well as their parents/carers, are invited to attend a hands-on workshop to learn about MS in a fun way.

Learn about:

  • What is MS
  • How MS affects the body
  • How MS treatments work

When: Wednesday, 2 October from 10am to 12.30pm

Where: 66 Constellation Drive, Ocean Reef

RSVP: Register your interest with Sabena Lund on 0429 267 970 or Sabena.Lund@mswa.org.au


MSWA may subsidise program funding for Members without NDIS funding.

 

Register
Kelmscott

Men's Resource Group 

Come along to meet other men living with a neurological condition. Share challenges, ideas, information and resources. A space for sharing and support.

When: Friday, 6 September from 10am to 12pm (morning tea is provided)

Where: MSWA Kelmscott – 2/2938 Albany Highway, Kelmscott

RSVP: Register your interest with counsellor Monique Chas on 0447 648 505 or via email Monique.Chas@mswa.org.au


MSWA may subsidise program funding for Members without NDIS funding.

Register
Vasse

Managing fatigue

If fatigue is a side effect of your neurological condition, join us for an interactive workshop led by our occupational therapy (OT) team. Here you will be able to share experiences and learn more about:

  • What can make fatigue worse
  • How to save energy and decrease fatigue
  • Prioritising and using your energy well

When: Tuesday, 17 September from 10am to 1pm

Where: MSWA Vasse – 2/18 Burler Drive, Vasse

RSVP: Register your interest with Sarah on 0404 476 816 or email ot.referrals@mswa.org.au by 10 September


MSWA may subsidise program funding for Members without NDIS funding.

Register
Bunbury

Learn about MS

Children aged 6-12, as well as their parents/carers, are invited to attend a hands-on workshop to learn about MS in a fun way.

Learn about:

  • What is MS
  • How MS affects the body
  • How MS treatments work

When: Tuesday, 1 October from 10am to 12.30pm

Where: MSWA Bunbury – 1 Mason Street, Davenport

RSVP: Register your interest with Nimisha on 0408 952 363 or Nimisha.Baird@mswa.org.au


MSWA may subsidise program funding for Members without NDIS funding.

Register
SHARE YOUR STORIES
If you have an interesting story that you would like to share with our readers, we would love to hear from you.
Contact us today
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